Responsum Health Delivers Information and Engagement Platform for Pulmonary Fibrosis Patients with Launch
Responsum Health is Partnering with the Pulmonary Fibrosis Foundation (PFF) to bring vetted, trustworthy and personalized content directly to patients' mobile devices with the Responsum for PF app
Washington, DC—September 17, 2019 – Responsum Health (“Responsum”), a revolutionary online platform and community convener for patients with chronic conditions, today announced the launch of their first mobile app, available for iOS and Android. Following the rollout of Responsum’s web-based app for pulmonary fibrosis patients in January 2019, this all-mobile experience offers a faster, smoother experience for users, and is available for iPhone, iPad and Android devices for free.
Today’s launch of the PF app brings Responsum one step closer to its vision of a world in which every patient with chronic disease has the power of a trustworthy, professionally-vetted Internet at their fingertips.
Responsum Health Founder and CEO Andrew Rosenberg said, “We’re extremely excited about this app. It is a milestone in our mission to revolutionize the way patients get their health care information. While the Internet offers patients the promise of unfettered access to massive amounts of information, we know they can easily find themselves overwhelmed by too much, or often underserved by inaccurate, inappropriate or overly complex content. Responsum Health solves that problem. And at the end of the day, a better-informed patient makes for better outcomes, and that is our number one goal.”
The Responsum for PF app will provide users with the following:
Rosenberg added, “ For patients with PF, the future of health care is here, literally at their fingertips, with the Responsum for PF mobile app. For doctors with newly diagnosed patients, we are your partner in providing vetted information that patients can trust outside of the office. And for existing patients, no longer will they be forced to sift online through overwhelming amounts of inaccurate, outdated and overly scientific information.”
Facts about Pulmonary Fibrosis
Although still considered rare, more than 200,000 Americans are living with pulmonary fibrosis (PF). PF is a deadly and complex disease that causes progressive scarring of the lungs and breathing issues.
About Responsum Health
Responsum Health is a free, revolutionary patient engagement platform that monitors, searches and curates the Internet and then generates a personalized Newsfeed of article summaries vetted by Responsum’s partners at the Pulmonary Fibrosis Foundation (PFF). Responsum wraps the Newsfeed into a comprehensive platform that enables patients to comment on and rate the articles, as well as share with their professional care team and loved ones. Responsum also enables patients to better organize their health information, find local patient support groups and services, and use a legislative advocacy tool for policies that impact their health care.
Jenny Rosenberg, Public Relations Director
Responsum Health Tackling the Challenge of Building Information Hub for Patients with Uterine Fibroids
On August 13, Responsum Health announced its commitment to build a new patient platform for people with uterine fibroids, a devastating, but under-recognized chronic condition that affects the lives of millions of people in the United States and across the globe. In partnership with Duke University Clinical Research Institute and two leading fibroids advocacy organizations, CARE About Fibroids and The White Dress Project, we are aiming to provide individuals with a trusted resource of vetted information about treatment options, support resources, and lifestyle tips, much like we do today for the pulmonary fibrosis community.
Unlike pulmonary fibrosis, however, which is a semi-rare disease with approximately 130,000 diagnosed cases in the US, uterine fibroids impact the lives of tens of millions of Americans, often leading to infertility, emotional instability, and economic distress.
When we developed Responsum Health’s approach to informing, empowering, and building patient communities around their common chronic conditions, we wanted to develop an approach that could be of equal value to patients of rare, semi-rare, and more common illnesses. Uterine fibroids will put that hypothesis to the test.
We are particularly excited about tackling the challenge of building an information hub for patients with uterine fibroids because the need is so great. It is mind-blowing to think that there is such a vast lack of awareness around a health condition that impacts such a large number of people. What we do know is that uterine fibroids has a significant impact on a person’s quality of life including fear regarding relationships, sexual function, body image, loss of control, and hopelessness. What we still need to better understand is how patients perform under the various treatments that are currently available to them and this is where our partnership with Duke will come in. Through our Responsum platform, and with the participation of an engaged community of UF patients, we will have the ability to glean valuable insights into their lived experiences. With the information about their symptoms, rate of recurrence, and ability to conceive, we will assist the medical community with developing better treatment protocols and help researchers to better target their efforts. And all the while, we’ll be helping to inform, empower, and organize people with uterine fibroids so that they can be better advocates for their own health.
And that’s what we consider a real win-win for patients.
I hope you’ll continue to follow our progress on Responsum for UF and look forward to your support.
Founder and CEO