It is with a very heavy heart that I must share with you that yesterday, February 7, the PF community lost a gentle soul and true hero, Prasha Tuladhar. She was 31 years old.
Prasha is the reason that Responsum for PF exists.
In 2014, when a team of graduate students from Carnegie Mellon University and I needed to select a therapeutic area to test the concept of an internet search tool and customized newsfeed for patients with chronic disease, we decided to focus on PF because one of our patient volunteers – the one who gave the most of her precious time and incredible mind to our researchers – was Prasha.
Indeed, Prasha’s story of struggle and strength, her combination of intelligence and humor in the midst of such an awful diagnosis inspired our team beyond words. And so to honor her contribution, we decided to focus first and foremost, on providing a new platform for information gathering to PF patients before all others.
I’ll never forget meeting Prasha in Nashville two years ago at the PFF’s annual conference. She couldn’t believe that the little project she had helped conceptualize had actually turned into something real. She seemed to disbelieve that she was actually responsible for inspiring us to focus on PF. But she was.
According to Prasha’s family, “she fought bravely until the very end. She was surrounded by her family as she passed. We hope she found comfort in our presence during her last moments.
Prasha was a beautiful being who was tragically saddled with this horrible disease. She did not let it dim her brightness, though. She lived her life happily and to the best of her ability. Knowing her, she would have wanted to sincerely thank everyone who supported her in every step of her life. We also would like to convey our deepest gratitude for your support and your prayers. Last but not least, we would like to thank Melissa (Prasha’s name for her donor) and her family for giving Prasha three wonderful years to live and enjoy. Saturday would have been her third Double Lungs Transplant anniversary.”
Today, we pray for Prasha’s peace and her family’s comfort. Despite our sadness, we must take solace in learning from her incredible, inspiring example of grace and giving, and feel gratitude for the tremendous legacy she has left for us.
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