Commitment to collaborate aligns the efforts of one of the world’s largest patient-led PF support communities with the developers of Responsum for PF, a state-of-the-art information and patient engagement platform.
FOR IMMEDIATE RELEASE:
July 24, 2019
Washington, DC and Dallas, TX, July 20, 2019 – PF Warriors LLC, one of the world’s largest patient-led support communities of pulmonary fibrosis patients, and Responsum Health, the parent company of Responsum for PF, a personalized newsfeed and support platform, are excited to announce an agreement to collaborate on their shared mission to improve the lives and quality of life of people suffering from pulmonary fibrosis.
As part of the agreement, both organizations will create an unprecedented level of cooperation to support each other’s endeavors. The alliance will provide the at-large PF community with a comprehensive, trustworthy, and non-duplicative collection of support programs, tools, inspiration, and support. Among other efforts, the two organizations will actively cross-promote each other’s activities, content, and benefits of membership.
Although still considered rare, more than 200,000 Americans are living with pulmonary fibrosis, a deadly and complex disease which causes progressive scarring of the lungs and breathing issues. Approximately fifty thousand new cases are diagnosed each year. About forty thousand existing patients die annually. Two medications are now available to slow the progress of PF but there is no known cure. Research and additional clinical trials continue.
"PF Warriors LLC's mission can be summed up as 'patients helping patients.'
We hold monthly support group meetings in Dallas, Texas and offer virtual online sessions for our members across America and the world. Our collaboration with Responsum for PF will help us provide up-to-date knowledge and ideas to an even larger population of patients, caregivers, and families stricken by this terrible lung disease.
"Bill Vick, Founder and Managing Partner, PF Warriors LLCTM."
“We couldn’t be more excited at the prospect of collaborating with PF Warriors LLC and their indefatigable founder and leader, Bill Vick,” stated Andrew Rosenberg, Founder of Responsum Health. “By working together, we send a positive message to all PF patients that both of our organizations and their complementary programs and platforms can be trusted partners as they embark on a challenging new life journey coping with this difficult health condition.”
Launched earlier this year and already used by over 500 patients, Responsum for PF features a searchable database of over 700 article summaries, curated for the pulmonary fibrosis community. Responsum for PF also provides useful health data tools including a shareable Patient One-Sheet, information on patient support groups, as well as patient assistance program contact information. A mobile app is due out this August.
About Responsum Health
Responsum is a free, revolutionary patient engagement platform that monitors, searches and curates the Internet and then generates a personalized Newsfeed of article summaries vetted by Responsum’s partners at the Pulmonary Fibrosis Foundation (PFF). Responsum wraps the Newsfeed into a comprehensive platform that enables patients to comment on and rate the articles, as well as share with their professional care team and loved ones. Responsum also enables patients to better organize their health information, find local patient support groups and services, and use a legislative advocacy tool for policies that impact their health care. Responsum for PF will be releasing a new mobile app in August 2019. For more information, visit responsumforpf.com.
About PF Warriors
The PF Warriors LLCTM is a volunteer managed group of more than 1,400 Pulmonary Fibrosis patients, families and medical professionals helping each other live with PF.
We bring our patient members together for interactive discussions with some of the most qualified lung disease experts. We also use social media extensively to help members connect with and learn from each other within a safe, inspirational environment. PF Warriors prides itself on being the "voice of the patient.” For more information visit PFwarrior.com